🔥 HS Quality of Life Impact Simulator

Pain and Physical Symptom Burden in Hidradenitis Suppurativa

Recurrent painful nodules dominate daily symptom experience.

• Daily: Pain frequency (placeholder metric)
• 7-10d: Flare duration (placeholder metric)
• Common: Analgesic use (placeholder metric)
• High: Sleep disruption (placeholder metric)

Physical symptom drivers

Pain, discharge, and odor are core symptom drivers.

Higher severity slider raises physical impact directly.

Clothing and Activity Limitations from Lesion Sites

Lesion location restricts clothing and physical activity choices.

• Frequent: Wardrobe limits (placeholder metric)
• Moderate: Exercise avoidance (placeholder metric)
• Daily: Dressing changes (placeholder metric)
• Variable: Mobility impact (placeholder metric)

Activity restriction drivers

Tight clothing and friction worsen lesion irritation.

Lesion presence toggle amplifies activity limitation.

Social and Relationship Impact of Visible or Malodorous Lesions

Visible lesions and odor reduce social and intimate contact.

• Common: Social withdrawal (placeholder metric)
• Elevated: Intimacy avoidance (placeholder metric)
• Frequent: Stigma reports (placeholder metric)
• Increased: Depression risk (placeholder metric)

Social impact drivers

Lesion visibility strongly drives social withdrawal.

Lesion toggle is the main driver of social impact score.

Work and School Productivity Effects of Hidradenitis Suppurativa

Pain and wound care reduce attendance and productivity.

• Elevated: Absenteeism (placeholder metric)
• Reduced output: Presenteeism (placeholder metric)
• Reported: Career limits (placeholder metric)
• Some cases: Disability claims (placeholder metric)

Productivity impact drivers

Severe flares interrupt work and school attendance.

Combined severity and lesion score raise productivity loss.

Overall DLQI Score Interpretation for Hidradenitis Suppurativa

Composite DLQI score classifies overall quality-of-life burden.

• 0-30: DLQI scale range (higher = worse QoL)
• ~10-15: HS avg DLQI (placeholder metric)
• >10: Very large effect (placeholder metric)
• >20: Extreme effect (placeholder metric)

DLQI scoring summary

Physical and social domains combine into one DLQI band.

Adjust sliders to move the DLQI estimate across bands.